Violet is doing very well after her open heart surgery. We are a little over 3 weeks post op and she has more energy than I ever could have imagined. She is now back in the NICU here at USA. I love it here. Her nurses love her, her Dr's love her...I couldn't ask for more...well maybe to not have a shift change during visitation and have to leave but I can deal with that if it's my only complaint lol.
She will be having a PH Probe tomorrow to check the acidity of her reflux and then she will be having a G tube inserted next week along with a Fundoplication. I struggled with the decision on whether to have the Fundoplication or not and have decided to go ahead with it. I fear the damage caused by her NOT having the surgery would be much more severe than if she did have the surgery.
After the surgery, as long as there aren't any other complications, she should be able to finally come home and hopefully this time FOR GOOD!
This has been the longest two months of my life. A constant battle rages inside of me as I have to make decisions that could harm her or help her. I feel like I have had to get a medical degree in only two months and I am tired. I'm tired of medical terminology, tired of having to drive to see my daughter when all I want is her at home in my arms, tired of walking in to a nursery with no baby in it, tired of the nightmares I have each and every night dealing with Violet. I just want a little normalcy and hopefully that will happen soon. Yes, we won't be what society considers normal...but it will be our NEW normal, filled with feeding tubes, pumps, Dr appointments and therapy appointments. It's hard to adjust to the new "normal" but I am getting there...slowly.